Jason B and his family are going on a road trip to raise money and increase awareness for the Epilepsy Foundation and Tuberous Sclerosis Alliance, two organizations that are working to find a cure for seizure related disorders. I work with Jason and really appreciate all that he has done in support of me and my family after my diagnosis of Multiple Myeloma, he donated prints that were raffled off during a benifit for me and my family. Jason will be leaving Fargo, ND and traveling throughout the western U.S. This is the email that he sent out today! If he is in your town and you have the time to stop by I am sure he would appreciate it! Or even better, urge your local media to provide coverage! I gave Jason one of the myeloma.org “Imagine Moving Forward” wristbands to wear on his trip.
For the last 2 years you have been hearing about and donating to the Journey For Jess. Through jeans day donations, brownie bars and angel food cake bars, the employees of Cetero have donated more than $2,000 to the Journey For Jess. Thank you so much.
Now the journey part of the ‘Journey For Jess’ is starting. We are embarking on our journey on July 10th and will be gone through Aug 2nd. We started the Journey For Jess to both remember and honor our daughter Jess and to try and make a difference for other families who are struggling with seizure disorders. You can learn more by visiting www.journeyforjess.com, but the basic premise is to capture people’s attention by photographing the beauty of the National Parks of the American West.
We will be posting pictures and videos of the Journey, as well as stories of some of the families we know that are affected by seizure disorders, at journeyforjess.blogspot.com and hope that we can get people to follow our progress daily, read the stories of families affected by seizure disorders and then if they feel moved to do so, donate to the Journey For Jess.
This is where we need your help.
Are you on Facebook or Twitter? Do you have email? If you could send a message to your Facebook friends, send a Tweet to your Twitter followers or send an email to your email contacts asking them to visit www.journeyforjess.com and journeyforjess.blogspot.com that would be great.
There will be a story on the Journey For Jess on WDAY Friday night at either 6 or 10 as well as a story in this weeks Detroit Lakes paper. We are working with the Fargo Forum and St Paul Pioneer Press to have stories run on the Journey For Jess in the next few days. We hope to have the stories picked up nationally by the Associated Press. We are also submitting our story to all of the local papers in the towns we will be visiting on the journey. As our story gets published we will be linking to them on our blog at journeyforjess.blogspot.com, and hope that you follow the links and tell your friends about them so our story can move up the list of most read articles and be seen by even more people. We know that our best chance of making a difference is to reach as many people as possible, so anything you can do to spread the word would be great.
Thanks in advance for your help,
Jason Beecher, CTFL
Journey For Jess Press Release
On July 10th Jason, Amy and Noah Beecher will be will be embarking on a 23 day Journey For Jess to remember and honor the life of Jess Marie Beecher. Jess Marie died on June 18th, 2007 from complications of an epileptic seizure.
Jess’ Journey showed us the reality of epilepsy and of seizure disorders, and made us realize that something needed to be done to raise awareness for seizure disorders and to help fund research. We started the Journey For Jess to remember and honor Jess and to try and make a difference for other families who are struggling through life with seizure disorders. We will be sharing our journey with the world by posting pictures, videos and stories as we travel to, and photograph, the National Parks of the American West. Our goal is to raise money and awareness for people affected by seizure disorders. All money raised will be split between the Epilepsy Foundation and Tuberous Sclerosis Alliance, two organizations that are working to find a cure for seizure related disorders while improving the lives of those affected.
Please follow Jason, Amy and Noah on their Journey at: journeyforjess.blogspot.com.